Emotionally, the past few weeks have been stressful. While God is not surprised by any of this, in spite of all my life experiences, I find myself surprised and disappointed. And of all things, I am surprised and disappointed in […]
Been thinking of how to continue to inspire our advocates. Yep, it took eight years to #passtheABLEAct. The healthcare dilemma is different though. The stakes are higher. As if healthcare is not enough, for our families this impacts more than […]
Happy Independence Day! I love the Fourth of July and not because I love fireworks. I love it because I have always loved American History and I have a deep-seated belief that we live in the greatest country in the […]
Sometimes the best way to tell the story is through pictures. I wish my photography were half as good as my friend Sherri Harnisch, but I think you’ll love the story anyhow. This week we headed to the NDSS Buddy […]
We live in a cynical world. There is little confidence in Congress to get anything done. People don’t believe that their one voice makes a difference, but Rachel and I are both proof that it does. Consider what my own […]
Congress is back in session this week. Time for an update. When last we left the ABLE Act, it had unanimously passed the Ways and Means Committee. Next stop House Rules committee and hopefully a September vote to make this […]
As my daughter would say, my brain is full today. What a week! We met up with old friends, eternal friends. We attended the National Down Syndrome Congress conference. It is a giant family reunion. I met many folks I […]
For the past four years we have been working to get our Kansas Congressman and Senators signed out to the ABLE Act. Actually, I’ve been doing it longer than that but the first few years were focused on Tennessee. For […]