A few weeks back, Rachel and I had the honor of leading a session at the National Down Syndrome Congress (NDSC) Virtual Advocacy Training Boot Camp. We had the task of sharing with participants how you effectively engage with legislators […]
I must first proclaim that we are down to one semester. Rachel successfully finished semester one of her senior year. She had a great semester. Powder puff touchdowns, homecoming dances, volleyball serves, and of course classes. She worked hard and […]
I’m a little late with my blog but a couple of weeks ago we did our annual NDSS Buddy Walk® on Washington. Over 350 people, including 95 self-advocates, from across our nation, most at their own personal expense, descended on […]
Apparently, Rachel is moving into her pink house sooner than later. She was irritated with me last week. Yes, this would be my sweet child with Down syndrome who is always happy. During one of her self-talk bathroom sessions I […]
#passEDtheABLEAct became my new hashtag yesterday. Tuesday night the United States Senate passed the ABLE Act as part of the tax extenders package. Shortly thereafter, they went home and many bills died. Next stop for the ABLE Act is The […]
Some say Rachel is what we Baptists call a “prayer warrior.” If she says she will pray for you, she does! Her prayers are usually very simple. She is usually thanking God for someone or something. If she loves you […]
A rare Sunday blog with a message from Rachel. Tomorrow morning I’m headed to Capitol Hill. I’m honored to be part of the National Down Syndrome Society (NDSS) advocate entourage heading to DC for the House Vote on the Achieving […]
Rachel’s first venture into social media is her twitter account Please welcome her by following her @Rachelspinkhous. Perfect name don’t you think? We’d been discussing her staring to tweet when we got some good news yesterday about the ABLE Act. […]
Have you noticed, it’s been awhile since I’ve said anything about the ABLE Act. Independence Day reminded me that I need to remind all of you and more importantly, Congress that is time to get this bill passed. Congressman […]
I went to the Hill last week. For my Rose Bud friends, that is not Joy Mountain but Capitol Hill. If you have followed my blog or know me at all, you know that I am passionate about advocating for […]