At the end of the school year, I call it IEP Season. I notice an upsurge in social media requests and pleas for information. I also seem to get more blog readers, emails and inquiries. So I’m cheating a bit […]
Continue reading »Tag: Down syndrome
On a Day Like Today
On a day like today most 15-year-old girls get up and go to school. Rachel, she got up early and rode with mom to Topeka. Today would be the next to last step in the process of the passage of […]
Continue reading »Rachel’s School Spirit & Inclusion
Back at the beginning of the school year Rachel ran for Student Council. We worked on posters for several weeks. She did her little speech. She handed out candy. Election day came and mom and dad nervously awaited her arrival […]
Continue reading »Ordinary and Whimsical
Last week was the National Down Syndrome Society’s (NDSS) Buddy Walk on Washington: the time we set aside to go an tell our stories on Capitol Hill. We also celebrate and give awards. This year I had the tremendous honor […]
Continue reading »Seven Days of Rachel’s Wild Life & Mom Too!
I’ll write more in-depth next week but on this Friday, I wanted to share some images from our past seven days and an unexpected piece of encouragement that an exhausted momma received when she returned home. I spoke at our […]
Continue reading »Why Advocate? We All Have a Story
Later today, Rachel and I are headed to Washington DC, arguably my favorite place. We are headed to the National Down Syndrome Society’s Buddy Walk on Washington. We are honored to be a part of all aspects of the program […]
Continue reading »Proms and the R-Word
The title is deceiving today. This and that would be a better title but I thought this might attract more readers! In addition to getting the Kansas ABLE Act passed this last week, Rachel went to the Down Syndrome Guild […]
Continue reading »Rachel’s Pink House in a Year?
Apparently, Rachel is moving into her pink house sooner than later. She was irritated with me last week. Yes, this would be my sweet child with Down syndrome who is always happy. During one of her self-talk bathroom sessions I […]
Continue reading »And Baby Sally Cried
Today was a big, big day at the Mast household. Baby Sally’s bed went to a garage sale for Inclusion Connections. A new little girl will be getting this super deluxe baby bed, bath, swing high chair combo that still […]
Continue reading »One of the Good Guys – #BobbyBandwagon
For some reason the media loves to share all the “bad boy” sports stories. It must sell or I guess they wouldn’t put it out there. Funny that pretty much everyone I know wants to see more of the good […]
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