Buddy Walk® : Game Changer in the Down Syndrome Community

Tomorrow is the 21st New York City Buddy Walk®. One of the coolest parts of the NYC event is the Times Square Video Presentation. Every year, NDSS reminds the world in a big way about the gifts that people with […]

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Not So Successful Start

Rachel’s sophomore year seems to be off to a great start. We have a capable case manager. Again, Rachel seems to have a really good teaching team. She takes great pride in her role as the sophomore girl’s volleyball manager. […]

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Speaking of Congressional Champions

Rachel and I had the honor and privilege of joining our Senator Jerry Moran (R-KS) for a lunch meeting today. We love Senator Moran for so many reasons. One of his district office staffers, Michele, coordinated today’s logistics and met […]

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Sophomore Rachel, Same Challenges as the Rest

Rachel headed off to school this morning as a sophomore. She is one of the smallest kids at the school but she is full of life. Over the past week she has been going to Student Council events in preparation […]

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My Corporate Champion

A few months ago my husband Jonathan got a call inviting Rachel to speak at an event in Memphis. The call was from Mr. Bob one of Sedgwick’s Senior Vice Presidents who had served on the board of Special Kids […]

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Promises

We just returned from a few days in Memphis. We had our first stop at my mom’s to celebrate her 75th birthday. Rachel and her MawMaw love each other, and Rachel LOVES birthdays. Fun was had by all. The main […]

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From a Galaxy Far, Far Away to Advocacy

In case you haven’t heard, I’ve got a new gig. Beginning August 17, I will be the new Manager of Grassroots Advocacy for the National Down Syndrome Society. I follow in the footsteps of the very capable Ginny Sessions Siller. […]

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Not Just Like You?

I am cheating again today. Last week I let you know that Rachel was getting her tonsils out. She did and she is recuperating according to plan. She is an amazing patient and a trooper. We girls aren’t accustomed to […]

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Advocacy: Tonsils, Inclusion, Life!

Rachel is getting her tonsils out tomorrow. They called Monday to go over the intake list.  About five minutes into the interview, the nurse says “Did you say she has Down syndrome or she has been tested for it?” This […]

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Two Suggestions for Church Inclusion

In my blogging, speaking and networking a hot topic is always “The Church” and inclusion.  Almost every time I do a speech or a workshop, questions arise. I am a person of deep faith. While I try not to hit […]

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