Curing Down Syndrome

In case you missed the weekend news, Rachel and I were honored to be a part of a piece that ran yesterday on  NBCnews.com, Could It Be a Cure? Breakthrough Prompts Down Syndrome Soul-Searching.” The article was prompted by new […]

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Last Year of Middle School

School doesn’t start until next week but we’ve been gathering supplies. Rachel saw this at Hobby Lobby and thought she needed it. It is a Cheeta bling calculator. Anything to help with math I say. She has also changed a […]

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Summer Recipe – Asian Chicken Slaw

I really love salads especially in the summer.  I have made this a few times. It is so pretty, and both Jonathan and I love it. Rachel will eat it but she would say “not my favorite.”  You can buy […]

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TN & AR – Are You ABLE?

As I write this, we have hit 39 Senate Co-Sponsors on the ABLE Act of 2013.  If you have been living under a rock for the past few years, you may not know that the ABLE act is Achieving a […]

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Are You Ready…

For some football? I am!  Here you all thought this would be some deep and philosophical debate about “curing” Down syndrome or the relationship between “maternal age and births of babies with Down syndrome.” A girl has to have a […]

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The R-Word Funny?

Reprinted from March 2013 Really, it’s not funny. It’s not about being politically correct or too sensitive either.  It’s about respect and dignity. If asked, Rachel will flash a huge smile and tell you that the R-word is Rachel—and she’ll even […]

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DS Parents – Guilty of Feeling

I started to say I learned something the past two days.  However, I realized I was simply reminded of something. A lot of parents, especially moms of children with Down syndrome and other disabilities, have a lot of guilt and […]

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Taking Away the Down Syndrome

You know it didn’t just begin, this quest for curing Down syndrome. I am no expert but based on what I’ve seen in my 14 years of living with Rachel, nine months of expecting her and all those years studying […]

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Not Just Like You?

Yesterday it was a great honor to spend our lunch time with some good friends. The occasion was another screening of the Just Like You – Down Syndrome video. Our sweet friend Kim had been wanting to host a viewing […]

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I’ll Take Her With Down Syndrome, Please

Last week I was at the National Down Syndrome Congress Convention for the first time in a few years.  It was good to be there and visit with many good friends while making some new ones.  A week ago today […]

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