Last week was the National Down Syndrome Society’s (NDSS) Buddy Walk on Washington: the time we set aside to go an tell our stories on Capitol Hill. We also celebrate and give awards. This year I had the tremendous honor […]
Ordinary and Whimsical
Category: Down syndrome
Seven Days of Rachel’s Wild Life & Mom Too!
I’ll write more in-depth next week but on this Friday, I wanted to share some images from our past seven days and an unexpected piece of encouragement that an exhausted momma received when she returned home. I spoke at our […]
Why Advocate? We All Have a Story
Later today, Rachel and I are headed to Washington DC, arguably my favorite place. We are headed to the National Down Syndrome Society’s Buddy Walk on Washington. We are honored to be a part of all aspects of the program […]
Proms and the R-Word
The title is deceiving today. This and that would be a better title but I thought this might attract more readers! In addition to getting the Kansas ABLE Act passed this last week, Rachel went to the Down Syndrome Guild […]
Rachel’s Pink House in a Year?
Apparently, Rachel is moving into her pink house sooner than later. She was irritated with me last week. Yes, this would be my sweet child with Down syndrome who is always happy. During one of her self-talk bathroom sessions I […]
And Baby Sally Cried
Today was a big, big day at the Mast household. Baby Sally’s bed went to a garage sale for Inclusion Connections. A new little girl will be getting this super deluxe baby bed, bath, swing high chair combo that still […]
Run Daddy Run
People want to know why Jonathan runs in what many of us consider “crazy” long runs. He started with the St. Jude Marathon and has now moved up to Ultra Marathons. Today he is running his 10th Ultra Marathon. A […]
One of the Good Guys – #BobbyBandwagon
For some reason the media loves to share all the “bad boy” sports stories. It must sell or I guess they wouldn’t put it out there. Funny that pretty much everyone I know wants to see more of the good […]
Celebrating the Rachel’s #WDSD15
This Saturday, March 21 the world will celebrate Rachel and all the other earthlings who have an extra 21st chromosome. World Down Syndrome Day (WDSD) is a day recognized by the UN, countries and organizations around the world where we […]
Sharing Down Syndrome with Books and …
October is National Down Syndrome Awareness month. During that month we do a lot of promotional activities and fundraisers. Many Buddy Walks and Step-up Walks are held around the country and globe to raise money, but just as importantly and […]