Tomorrow is the 21st New York City Buddy Walk®. One of the coolest parts of the NYC event is the Times Square Video Presentation. Every year, NDSS reminds the world in a big way about the gifts that people with […]
Continue reading »Category: Down syndrome
Awe Struck/Never Forget 9-11
Like many of you I remember exactly what I was doing when I heard that the World Trade Center had been hit by planes. I was not at home and everyone around me was chattering about it but no one […]
Continue reading »College Football and Blueberries?
Strange title, I know. Most who know me know that college football season is my favorite time of the year. I love going to the University of Arkansas campus for football games. I must admit it makes me a little […]
Continue reading »Not So Successful Start
Rachel’s sophomore year seems to be off to a great start. We have a capable case manager. Again, Rachel seems to have a really good teaching team. She takes great pride in her role as the sophomore girl’s volleyball manager. […]
Continue reading »Dear Teacher – Most Read Blog
Back to school time so many of you requested that I re-run this piece that originally ran August, 2012. Dear Teacher, IEP Wounds and now Taking Away the Down Syndrome are my three most read blogs. You have my permission […]
Continue reading »Speaking of Congressional Champions
Rachel and I had the honor and privilege of joining our Senator Jerry Moran (R-KS) for a lunch meeting today. We love Senator Moran for so many reasons. One of his district office staffers, Michele, coordinated today’s logistics and met […]
Continue reading »Sophomore Rachel, Same Challenges as the Rest
Rachel headed off to school this morning as a sophomore. She is one of the smallest kids at the school but she is full of life. Over the past week she has been going to Student Council events in preparation […]
Continue reading »My Corporate Champion
A few months ago my husband Jonathan got a call inviting Rachel to speak at an event in Memphis. The call was from Mr. Bob one of Sedgwick’s Senior Vice Presidents who had served on the board of Special Kids […]
Continue reading »Promises
We just returned from a few days in Memphis. We had our first stop at my mom’s to celebrate her 75th birthday. Rachel and her MawMaw love each other, and Rachel LOVES birthdays. Fun was had by all. The main […]
Continue reading »From a Galaxy Far, Far Away to Advocacy
In case you haven’t heard, I’ve got a new gig. Beginning August 17, I will be the new Manager of Grassroots Advocacy for the National Down Syndrome Society. I follow in the footsteps of the very capable Ginny Sessions Siller. […]
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